This week I went back to work almost full time. The whole Groupon team has been so supportive and encouraging over the last few weeks and work has been a welcome distraction. I do however miss spending time with the other kids who have been spending lots of time with my mum, our nanny / adopted family member Liz, as well as our amazing friend. I however got to spend a few moments at Ronald McDonald House's rooftop garden with the other kids this morning. We were hoping to see the air part of the Air & Water show but we're too far away and just see an occasion plane in transit.
Earlier this morning Stephanie and I visited the Rehabilitation Institute of Chicago for a tour as we should be transferring there next week to start rehab after this first round of chemo is complete. They're the #1 ranked rehabilitation hospital in the U.S. so we're really fortunate that Jonah will get the best possible care. The facilities are however old and all rooms are shared so we'll have to used to the dramatic difference between that and the beautiful 2 year old Lurie Children's Hospital with its bright, modern, airy spaces and state of the art private rooms. RIC is building a beautiful new hospital themselves, but it's still a couple of years away from completion. New facilities and our comfort are at best priority #967,483 but we may have to remind ourselves of that once in a while.
Jonah now has low enough mexotrethate levels (first chemo drug) that we should be able to proceed to the next phase of chemo either later today or tomorrow. He's also getting slightly more responsive each day which is encouraging. We see both more consistent reaction to people coming into the room and a little core hand squeeze response to simple questions. He loves attention of people talking to or reading to him which visitors are welcome to do. If you're planning a visit and own a favorite children's book feel free to bring it to read to him.
Thanks again to everyone for the continued support, prayers, bible verses and words of encouragement. We're so blessed by each of you.
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