Friday, February 5, 2016

Amazing...

5 years old.  A years worth of chemo over 6 days.  Will kill him without stem cell transplant.  Excretes through skin and is so toxic that he needs to be bathed every 6 hours.  Woken up in the middle of the night for a bath and traumatic dressing change.  Totally justified at being upset - cries and says no.  Says he doesn't like me.  We have bath.  Change dressing.  Unprompted - "Daddy, I'm sorry for being mean to you.  I love you". Daddy is a wreck.  This kid amazes me.  He's my goofy hero.  

Jonah selfie the night before admission at Capital Grill where he likes to go for soup, steak and mac n cheese. 

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