Waiting Interrupted

Posts have been harder to come by in these past few days as we've just been waiting. Waiting for Jonah to heal from surgery, waiting for Jonah to come off the vent, waiting for Jonah to "wake up", waiting to start treatment - just a lot of waiting. Sunday, Jonah was able to be removed from the ventilator and managed the transition to room air very well. The medical team views this as a big win, and we love seeing all of Jonah's face again, but it's done little to make the waiting seem more bearable. Of course, things can change in an instant here and Tuesday morning our nurse came in and turned off Jonah's NG feeding tube and said that neurosurgery would be in within 20 minutes. Luckily only a few minutes transpired before neurosurgery came in and told us that recent imaging showed another growing blood clot on his brain that would need to be surgical addressed. Surgery ended up being straightforward, uncomplicated and successful. Current imaging shows that the whole clot was removed and that Jonah's brain is reclaiming the space. Additionally we have seen a decrease in Jonah's agitation level, so all around surgery was a good thing.

Jonah seems to be in a very stable place right now, so we expect to move off of the PICU this afternoon and head back to the neurosurgery floor. As soon as neurosurgery releases us, likely early to mid next week, we'll move again, this time to the oncology floor and will begin chemo. Until then, we're waiting again.........