A Good Bad

Jonah has learned a new trick in the last few days - it's a good bad kind of trick.  He's figured out how to pull his NG tube out of his nose as a form of silent protest, and he's done it twice in the last 2 1/2 days.  Although with therapy he is starting to eat chocolate pudding, cheetos and applesauce, he's not ready to sustain himself of a diet of ingested foods, so it's not a good trick; but it is a good trick because it demonstrates cognition, planning and developing coordination.  We are working on new taping methods to try and make it harder to pull out, because once his counts go super low again, they won't replace an NG for risk of infection, so then we'd have to figure something else out to keep him nourished that wouldn't be as effective.  This is kind of like when your kid punches the bully - you have to discipline them because you shouldn't hit, but secretly you're proud of them.

We are starting round 2 of chemo this afternoon, so we'll be at Lurie for the next 8-10 days and then we'll go back to RIC and try and pick up where we left off.  Everyone will be on high alert for fevers though, so I expect that even when/if he gets one it shouldn't be as traumatic as last time.  Prayers for that to be the case.