Thursday, September 17, 2015

Chillin'


We've been hanging out at Lurie for the last week.  It started with a stem cell harvest that we hope to use as rescue after the 6th round of chemo.  After the harvest was over, we started chemo round two.  I'd say that we've just been chillin' waiting for chemo to be over, but actually it's the opposite, we've been cooking'.  Jonah is on day three of random fevers.  These aren't neutropenic fevers as he still has white cells (although they're on the decline) and nothing is culturing, so there's a chance this is just how he's going to react to chemo this round.  We're not leaving Lurie though until the fevers resolve, so who knows.  This round of chemo has also caused much more throwing up.  We've added another anti-nausea med to the regime to help.  

It feels like we're in the middle of the journey, without much to report.  All of the stuff I mentioned is notable and governs our days, but it also feels like part of our new normal.  One thing though that still doesn't feel like the new normal is the outstanding community that we're part of.  Thank you all for everything!  We've had a number of out of town visitors to help with the kids and just offer support, meals at home, meals and visits at the hospital (still 8 weeks later), lots of people buying shirts, lots of people participating in the 8.5k run/walk, one-way carpools (where you do all the driving), acts of service, prayers, cards, texts, phone calls, emails and on and on.  We are running a marathon and are honored that so many are still running it with us.  Thank you for your loving support even as the newness of our reality wears off and becomes the regular.

4 comments:

  1. I an just LOVING this photo...Crying looking at this photo. Praying over this photo...Way to be an AWESOME MOM, Stephanie... Love you SO!!!!! jo evans

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  2. Stephanie, we are praying for you and your little one. This picture is precious. It shows courageous love.

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  3. Stephanie, we are praying for you and your little one. This picture is precious. It shows courageous love.

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  4. Stephanie, your family has been on my heart this week, and today I found your blog. So thank you for sharing your journey, now I can pray specifically.

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